Maddawg

Of all the grandkids, Maddux is probably the least likely to be offended that he was not the first grandkid to be blogged about!  Every single one of my grandkids are special in their own special, unique ways that makes each of them "my favorite."  But Maddux was the first.  He is special in that he and Melanie lived with me when he was first born because Bryan was away playing ball and the bond between him and me was cemented in the very first days he was even alive.

I am so proud of the young man he has become.  He loves his Mom and Dad.  And he loves Kaleigh and Jacoby.    And he loves sports!  Especially baseball!

This picture was when he was in Jr. High - his last year to play football after having had two concussions.  

This picture was taken this year, a couple of weeks ago in fact.  This game was the one that Maddux ended up with 23 points - 4 three pointers.  Right after this is when Reed (far left) suffered a concussion  while playing basketball and his doctor wouldn't even allow him to attend a game for a week or so.  The tall one in the back is Stetson.  We've never come up against another team yet that had anyone as tall as Stetson.  He always gets the tip off.  Right behind Maddux is Alex.  These boys have a lot of fun!  Maddux suffered yet another concussion this year too - this time in basketball practice.

I love this picture of Maddux getting a high-five from his Dad following the game.  These two guys are best buds!  I've never known of a 15 year old who had a closer relationship with his Mom and Dad as Maddux does.  But it's a two way street because Melanie and Bryan have the utmost love and respect for all of their children.  

But this is Maddux's greatest love - Baseball!

This is Maddux at his best - on the mound!

And everyone knows that if you're going to do it right - you've got to do it with a "monster face!"  Reminds me of the "monster face" that his Mom and Tish Garlington always wore while running track.  The expression "monster face" came from our good friends Terry and Alice Garlington.  

And the release!  Look at the intensity!

At shortstop!

And he's running!

All of these baseball pictures were taken in 2011 while he was playing for the Dallas Tigers.  This year he will be playing for his high school team - the Yellow Jackets - and then for the D-Bats.  I'm already praying for his safety and health!  He spent the majority of this last year in physical therapy rather than on the field and he was miserable not being able to play.  With the third concussion this year I'm thinking this will be his last year to play basketball.  He is a good basketball player, and he was a good football player, but he just can't risk getting hurt and damaging his career in baseball.  I think after this year that he will be strictly playing baseball.

Maddux = off the chart potential.

The J-Man

The little guy sitting in the high chair in the middle of everything is The J-Man.  He is my sunshine!  This picture was taken on his 3rd birthday - yes, that would be Christmas Day.  He is surrounded by (at 12:00) his sister, Kaleigh, who he calls, "La La."  Sitting on the floor at his feet is his big brother, Maddux, who Jacoby refers to as "Pow Pow."  Over his right shoulder is his great-grandmother, my Mother, who is known by everyone as "Grannie."  The two boys on either side are his cousins, Luke, (in purple) and Logan (in green stripe shirt).

And yesterday when I went to his house to keep him for a little while I found this little bit of sweetness had climbed up on the couch and decided to take a late afternoon nap.

What's so unusual about this is that Jacoby very rarely sleeps.  Because of his IS (Infantile Spasms) his little brain doesn't shut down long enough to allow him to sleep very much.  His entire life he's been able to function on an average of just 5-6 hours of sleep a day.  He may have slept 8 hours at a time, but that is very rare.

He has taken every kind of medication known to mankind to help him sleep, but much to his poor sleep-deprived parents' internal clock-works, he still doesn't sleep very much.  Or at least not very long.

But the fact that he doesn't sleep or everything that does not function as it does in most 3 year olds is not what defines Jacoby.  It is his sweet personality and easy dispositition and those adorable curls that wins your heart.  While I was taking pictures of Mother's Spring flowers the other day, I was able to snap this precious picture of her with Jacoby in the background.  His very favorite thing in the world is to be swung around.  He will seek out your hands and coax you to lift him off the ground and swing round and round.  Pure JOY for him!

This was taken about a month ago while he was in the doctor's office.  He was knocking on the door and everything else in there testing out the sounds and to let everyone know that he was in the building!

The world is Jacoby's playground but he needs to explore it very slowly and with much caution.  Don't know if it's due to the fact that he is blind or if he is just having to think very, very hard on processing just what every little nuance in life means and if it's safe to continue.

I'm not saying that he is slow because if you offer him something to eat that he doesn't approve of he can let you know very fast that that's just not going to work.

His oral sensory disorder and low-tone muscles prevent him from eating like normal kids.  In fact, his Mom, Melanie, has done an absolutely wonderful job keeping him one step away from having to have a feeding tube.  He goes to a speech therapist twice a week for close to two years now to just work on his eating abilities, and he is offered a wide variety of foods all day long.  Still, he prefers his bottle.

He's funny in that one of his biggest sensory issues is textures.  Where most three year olds love a squishy slice of cheese, Jacoby couldn't be more grossed out because of the "yickiness."  Won't have anything to do with it.

There was a time that I thought he would never learn to walk due to his inability to eat and get stronger; there for a while he looked so mal-nourished that I thought he might not even live.  But he did learn to walk.  And he walks alot now.  In fact, he is probably up on his feet and walking around a good 18 hours a day.

When he was just 7 months old he began having seizures.  Started the last day Melanie was finishing up her requirements to get her teaching certificate.  Melanie and Bryan did their own research and discovered what they thought was happening and what Jacoby had.  They were the first ones to put their finger on something called Infantile Spasms.  They were able to film little Jacoby throw his arms out repeatedly and sent it to their good friend and family doctor in an email during the night.

Jacoby was referred to a neurologist who immediately agreed with their diagnosis and put Jacoby (and Melanie and Bryan) in the hospital to begin a regime of ACTH.  This miracle, and extremely expensive, and sometime controversial drug stopped the seizures almost immediately.  Most IS children are not this fortunate to get such rapid results.    But every seizure damages a child.  The verdict is still out on just how much damage the seizures and the ACTH have done to Jacoby.  ACTH is controversial because of the side effects it can cause but when you're up against the wall and you've just got to do something, anything, to stop the seizures in your baby, you have to roll the dice and do what you can to just save the child.  

Jacoby was saved.  He is a blessing.  And he has a purpose.  That purpose is what makes us love him so much and so passionate to give this child a fighting chance.  He is surrounded by the most loving family you will ever find.  God knew what He was doing when he gave a child like Jacoby to parents like Bryan and Melanie.  Sometime in the future I will write just how special Melanie and Bryan are.  But today, I'm thanking God for the blessing he gave us named Jacoby.

  

Well, it's apparent that I don't know how to post the "button" because it didn't magically appear after I closed down.  Don't think I could go back and find that button now anyway.  Not very committed to that project am I?  Maybe committed to the project, just not in the promotion of it and learning how to post a "button" link to the project.  I am still trying to do my daily "good deeds" or "encouragement" though.

Last night Jimmy and I went to Kaleigh's basketball game.  Unfortunately, this is the very first game I've gotten to see her play in this year.  I think because she's not a real big fan of playing basketball - she absolutely loves volleyball and cheering - I think I haven't put out a lot of effort to getting to one of her games.  I think I'm beginning to see a problem with "committment" in my life!  I'm truly committed to my only granddaughter, but maybe not so much in a game that she's not really into.

Anyway, though I may have committment issues in my life, I am an optimist and I'm going to attempt another first.  I took a couple of hundred pictures at last night's game and I'm going to try to see if I can't post a few of them here.  I know 'Mo Joy posts lots and lots of pictures on her blog and Melanie and Jodi have posted some too - when they would post.  Maybe this committment issue is an epidemic and I got it from Melanie and Jodi.  I know it can be done so I'm going to try it.  If it works, look out!  This Nana loves her grandkids and loves to take pictures of them.

Woo Hoo!  It appears that I actually got something done!  I'm on a roll.  I'm going to see if I can do it again!

I'm intoxicated on my abilities!  What a rush!  I've posted pictures!  And look at that cute girl!  Isn't she adorable?  And she's just as sweet as she is cute!  Wow, that's a lot of exclamation points!  I told you I was a passionate Nana!  

That nasty little spot on the side of her nose is where Courtney scratched her in practice and not a piercing that's gone wrong.  

And here she is on the foul line playing defense and ready to get that re-bound.  Look at that concentration.  Maybe she won't grow up to have committment issues like her Nana or Mom.  

And this is what I came to take pictures of!  She is the official person to get the jump-off at the beginning of the game.  And she did get this one!  Unfortunately, the coach thought she needed to see it more than I needed to take a picture of it and pretty much blocked my view!  What's up with that?  Doesn't a Nana outrank a Coach?

This is one of those "you'd have to be there" moments to appreciate this.  Yes, Kaleigh threw the ball up and the ball got stuck between the basket and backboard in the game.  Though she's a pretty serious athlete and I'm proud of her to not give into those Jr. High School giggly moments, she (and the rest of her team) did find this pretty amusing while they waited for the ref to get another ball and knock it down.  

And even though, I am a really, really bad photographer and this shot is out of focus and she's got her eyes closed, I loved it because of how awesome her ponytail looks in mid-run down the court!  Yep, this is my blog and I want to devote my time and space to a bad photograph just because I like the way K's ponytail looks.

And this is my final shot of the night.  I don't know what the occasion was but each of the girls handed the coach a single long stemmed yellow rose at the end of the game and stood together to let me take their picture.  I took about 25 pictures of them getting in this position.  It's really pretty funny what lengths Jr. High girls go to get in their desired pose.  That # 24 just to the right of center is my favorite granddaughter.  I am so proud of you and when you talk about optimism - I can see all the potential in the world in her sweet face, her ambition in her beautiful eyes, and the compassion in her heart.  I love you Katie-bugg! 

  

http://toddlerapproved.blogspot.com/2012/01/100-acts-of-kindness-project-2012.html

This is my very first attempt at writing a blog and right now in my life with all that I have going on it's probably the very last thing I need to be attempting. I've seen some people get started with a blog and go like gang busters at the beginning then slowly write less and less until they find themselves at not having written anything in over a year. (Melanie. Jodi.). I hope I'm not like that. I have so much I need to remember and feelings I don't ever want to forget that right now, today, I have full intentions of still be writing this time next year. And the year after that.

What made me decide to go ahead and start this is that I found this blog on Pinterest today that encourages everyone to accept a challenge to do something nice everyday for 100 days. They even supplied a button to include on your blog to say that you have accepted the challenge. And that button maybe my first failure as a blogger. Bloggess? What am I suppose to call what I am doing? I'm "blogging" but what is it you call a person (female) who writes a blog?

Back to the Pinterest challenge "button." I copied and pasted that button over and over and every time I tried to paste the button it would show up as this long http//..... site. I finally just left it and hope that when I close down and come back that it will actually be a button and not a http//......

I'm doing this because I think I need to be more mindful to be thankful. And a nicer person. And concentrate more on to think of others. Heck, everyone should do that but I think it needs to begin in me. Maybe, just maybe, my actions will encourage just one other person to share a smile, or do something nice, or be thankful, or remind someone from Whom all our blessings come.

I've already done my first act and know what my second one is going to be. Hopefully, after 100 days this will be a habit!

One other thought before I quit my first post. I don't think very many people will be interested in reading this because I seem to be fairly non-dimensional. I am a Nana and I love my grandkids like no other Grandmother has ever loved a grandchild. And I am pretty much eaten up with anything to do with Airstreams. So unless you're really interested in Maddux, Kaleigh, Logan, Luke, Jacoby or Jacob or those shiny, silver bullets called Airstreams, you're probably not going to be interested in reading what I have to say. And that's okay. My feelings aren't going to be hurt.

Next time - I'm hoping the button will suddenly and magically appear and I will attempt to post pictures! I hope I can find my way back!